What if Everyone Did a Little Something to Raise PH Awareness?

Earlier this week I wrote a blog post about an upcoming webinar focused on providing tips to help you share your PH story with reporters. On Tuesday, August 30, one of PH’s star media advocates, Kimberlee Ford, will host Increase PH Awareness and (Generation) Hope in the Media. During the webinar, Kimberlee will talk about her experience working with reporters and the tips she’s learned along the way. In this blog post, she explains why she works with the media to raise PH awareness and why she thinks you should too!

If would be great if everyone could do something to help raise pulmonary hypertension awareness. A good way to start is to speak with the media and share your PH story. I know it can be scary at times to share details about your medical history. It was for me, but I did it. If you do not do it, who will?

Your story might help another person get involved or better yet, get them to seek much needed medical attention. The goal of patients speaking to the media is to educate the world about this rare, incurable and life threatening disease. We always say that people do not think we are sick because PH is an invisible disease. This is our chance to share our voice and show others what PH looks like. The support of everyone in the PH community is needed to make pulmonary hypertension well known like other incurable diseases.

One day we will have a medical cure if we continue to spread awareness and raise funds for a cure. The media is the key to help get the word out about pulmonary hypertension and if we continue to educate more people about the disease there will be more people willing to donate for research.

I'm always looking to share with and get new ideas from the PH community, so join me on PHA’s upcoming webinar for tips for Generation Hopers on sharing your PH story with reporters!

Increase PH Awareness and (Generation) Hope in the Media!
Webinar (Web Log-in and Phone Dial-in Required)
Tuesday, Aug. 30, 3:30 p.m. ET/12:30 PT