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Showing posts with label Sean Wyman. Show all posts
Showing posts with label Sean Wyman. Show all posts

Monday, November 12, 2012

PH Awareness Month Continues

By Sean Wyman


With November here, social networks and support groups are bustling with discussion of what people are doing to raise awareness for Pulmonary Hypertension Awareness Month. If you didn’t know already, November is Pulmonary Hypertension Awareness Month, and is one of the greatest times of the year in my opinion. Though many people raise awareness for PH throughout the year, this is one time that globally the PH community unites and goes forward to teach as many people like politicians, health care providers, and their local communities about our rare lung disease and raise awareness worldwide.

There are many ways that you can get involved with raising awareness for PH this month, and you can see many examples by contributors in Generation Hope already. Colleen Brunetti has coordinated a Zumbathon on November 9th. Also, Alex Flipse (Maryland) and Jen Cueva (Texas), both members of Generation Hope, have already gone forward and received proclamations from their cities and surrounding. If you’re interested in getting a proclamation from your area, you can find the easy steps and templates for the official paperwork on PHA’s website.

Other individuals have used their support groups to put on PH Fun walks and have raised awareness that way. If you are doing a major activity, utilizing the media is a great way to raise additional awareness. A guide regarding how to contact the media about PH and your events is enclosed later in this entry. However, really, ways to raise awareness for PH are only limited by your imagination, so let your imagination go wild! Another example of PH awareness is Alex Flipse’s “PH Warrior” photo’s that she has been making this year. Any inspirational image you can come up with and share on your social media (Such as Twitter, Facebook, Myspace and so forth) is a fine example of raising PH Awareness!

Other people, like me, are doing even more off the wall things. Last year, at the very end of Pulmonary Hypertension Awareness Month, I created a video giving examples outlining ways to raise awareness for the condition throughout the year. This year, I am taking it a step further, this year I am doing a series of shorts that I am calling The Adventures of PH Man. Stay tuned I promise to make it as enjoyable and relatable as possible. Also, going to school at a health science university, I will be in contact will be in contact with the President of the university and he also will be on board with raising awareness on campus, especially since WesternU has graduated a fellow Generation Hope-r and currently has one enrolled here. The possibilities are limitless!

If you’re interested in raising awareness through the media the PHA has plenty of guides to help you raise awareness. Further, there are plenty of people at the PHA that are willing to help you raise awareness. If you are interested in contacting the media to raise awareness check out the Media Guide which can be found on PHA’s website.
Other easy things that YOU can do are post meaningful status updates in your social networks (Facebook, Twitter, Myspace, etc.). Tell your friends, family, and followers what it means to have PH. You’d be amazed at how fast things can go viral and be shared through these outlets. Share the “Sometimes It’s PH Campaign” on your social networks or links to something that you find meaningful on PHA’s website. Just about anything is possible! As William Arthur Ward said, “If you can imagine it, you can achieve it” and when it comes to raising awareness for PH throughout PH Awareness Month, and after imagine it, dream big, and in the words of Nike “Just Do It!”

If you have questions, comments, or are interested in discussing your ideas, I welcome your emails at Sean@PHAmentors.org.

Tuesday, June 12, 2012

Young Adult Advisory Board: Driving Generation Hope Home

By Sean Wyman

Sean Wyman
During 2009 things were changing at PHA, and questions were being asked of the young adult patients on how PHA could better serve those who utilize their service. I was privileged to be a part of a focus group conference call with several young adults who have pulmonary hypertension, and we were being asked questions on how PHA could better serve us and others like us. I think at that moment was when things started to take place and soon after this conference call, myself and several others received emails asking if we would like to be part of the Young Adult Advisory Board for PHA. The goal of the Young Adult Advisory Board was to help develop programs for young adults and young professionals in their 20’s and 30’s.  Many of us have different needs than the children and older adult counterparts. Throughout the last two years, the Young Adult Advisory Board has helped bring forth the Generation Hope Google group, Facebook page, blog, and other resources for young adults with pulmonary hypertension.


Lindsay Nicol
Colleen Brunetti
 The advisory board consists of several young adults who are active in the community raising awareness and are advocates for pulmonary hypertension. Colleen, Brit, Lindsay, Sean (me), and our newest addition Josh have been working within our communities—online, locally, and beyond—to help enrich the lives of others that are much like ourselves, young adults that want not to be defined by our PH, but to inspire others to continue to fight and continue to hope. Colleen summed it up best when she said, “I helped start Generation Hope because I wanted to give back to the community and create a safe space where people our age could gather and share similar experiences.” Personally, I share the same sentiment, and I know that Brit, Josh, and Lindsay feel the same way. We work closely with Chanda at PHA to continue to provide ideas on how to improve PHA and Generation Hope services for young adults.

Brittany Riggins
Joshua Griffis
In closing, we on the Young Adults Advisory Board are here for you and always welcome comments and ideas. If you’re fortunate enough to be joining us at the 10th International PH Conference and Scientific Sessions, and you see us, let us know what you think. Finally, Colleen, Brit, Lindsay, Josh, and I would like to invite you out to Generation Hope After Dark on Friday, June 22, 2012 at 9pm. We hope that you’ll come out and meet with us and other young adults like you.  Rumor is a Special Generation Hope Drink will be availabe for purchase. We look forward to seeing you there!

Thursday, January 19, 2012

Share your PH Video Story!


Please enjoy the latest Generation Hope in Action (GHA) video from Sean Wyman, as he discusses Tips for College with a Chronic Disease.  GHA is a subgroup of Generation Hope that strives to raise awareness, advocate for the cause and increase education for young adults living with PH. If you are interested in social networking, civic engagement or letter writing, we would like to hear from you.  Currently, we are planning several video messages to share with the Generation Hope community and their social networks.

Are you asking yourself, “What can I talk about?”

  • Tom Lantos Pulmonary Hypertension Research and Education Act of 2011
  • Dating with PH
  • Adoption and PH
  • College life and PH
  • Working and PH
  • Managing insurance and PH


This is a fun and easy way to educate the general public about living with PH as a young adult. If this sounds interesting to you, I would like to invite you to share your story!  PHA is happy to loan you a flip camera to make your video message.  For more information, on how to get started, please contact Chanda Causer at PHA.