By Sean Wyman
With November here, social networks and support groups are bustling with discussion of what people are doing to raise awareness for Pulmonary Hypertension Awareness Month. If you didn’t know already, November is Pulmonary Hypertension Awareness Month, and is one of the greatest times of the year in my opinion. Though many people raise awareness for PH throughout the year, this is one time that globally the PH community unites and goes forward to teach as many people like politicians, health care providers, and their local communities about our rare lung disease and raise awareness worldwide.
There are many ways that you can get involved with raising
awareness for PH this month, and you can see many examples by contributors in
Generation Hope already. Colleen Brunetti has coordinated a Zumbathon on
November 9th. Also, Alex Flipse (Maryland) and Jen Cueva (Texas),
both members of Generation Hope, have already gone forward and received
proclamations from their cities and surrounding. If you’re interested in
getting a proclamation from your area, you can find the easy steps and
templates for the official paperwork on PHA’s website.
Other individuals have used their support groups to put on
PH Fun walks and have raised awareness that way. If you are doing a major
activity, utilizing the media is a great way to raise additional awareness. A
guide regarding how to contact the media about PH and your events is enclosed
later in this entry. However, really, ways to raise awareness for PH are only
limited by your imagination, so let your imagination go wild! Another example
of PH awareness is Alex Flipse’s “PH Warrior” photo’s that she has been making
this year. Any inspirational image you can come up with and share on your
social media (Such as Twitter, Facebook, Myspace and so forth) is a fine
example of raising PH Awareness!
Other people, like me, are doing even more off the wall
things. Last year, at the very end of Pulmonary Hypertension Awareness Month, I
created a video giving examples outlining ways to raise awareness for the
condition throughout the year. This year, I am taking it a step further, this
year I am doing a series of shorts that I am calling The Adventures of PH Man. Stay tuned I promise to make it as
enjoyable and relatable as possible. Also, going to school at a health science
university, I will be in contact will be in contact with the President of the
university and he also will be on board with raising awareness on campus,
especially since WesternU has graduated a fellow Generation Hope-r and
currently has one enrolled here. The possibilities are limitless!
If you’re interested in raising awareness through the media
the PHA has plenty of guides to help you raise awareness. Further, there are
plenty of people at the PHA that are willing to help you raise awareness. If
you are interested in contacting the media to raise awareness check out the
Media Guide which can be found on PHA’s website.
Other easy things that YOU can do are post
meaningful status updates in your social networks (Facebook, Twitter, Myspace,
etc.). Tell your friends, family, and followers what it means to have PH. You’d
be amazed at how fast things can go viral and be shared through these outlets.
Share the “Sometimes It’s PH Campaign” on your social networks or links to something that you find meaningful on PHA’s website.
Just about anything is possible! As William Arthur Ward said, “If you can
imagine it, you can achieve it” and when it comes to raising awareness for PH
throughout PH Awareness Month, and after imagine it, dream big, and in the
words of Nike “Just Do It!”
If you have questions, comments, or are interested in
discussing your ideas, I welcome your emails at Sean@PHAmentors.org.