PH Awareness 2015

By Kiara Tatum

I can’t believe another year has passed by, and PH Awareness Month is here once again.  During the month of November, there are many events, fundraisers, support group meetings, advocacy action, and other activities to spread PH awareness.  This is also a great time for young adults diagnosed with PH to spread as much PH awareness as we can during the month.  I know it can be difficult getting involved in attending events or hosting a fundraiser, but I’m going to share some great ways to spread PH awareness using social media.  

One social media event that goes on until November 30 is #Heart2CurePH.  It's simply printing the "Please Co-Sponsor H.R. 3520 sign" and taking a selfie or a usie with friends and family and posting it on your Facebook or Twitter page with the #Heart2CurePH.  Don't forget to post on your Members of Congress pages as well to see if they have the #Heart2CurePH by sponsoring the Pulmonary Hypertension Diagnosis and Research Act.  For more information go to Heart2CurePH Photo Campaign on Facebook.  

#Heart2CurePH Campaign is part of the 2015 National PH Advocacy Day on Thursday, November 19.  There are three ways to get involved including the #Heart2CurePH, giving your Members of Congress a call, and visiting your local legislature office.  Find out more information of Periwinkle For A Cure: National Advocacy Day here.  We are coloring the world periwinkle this month.  So change your profile pics and cover pages on Facebook to PH Awareness themes.  Can find them on the Pulmonary Hypertension Association Facebook page.

Now ladies, and the fellas too, this one is a good one.  Get out your periwinkle color nail polish and paint your nails.  It's time for the #ManiUpForACure Campaign.  Take a pic of your nails and post on social media with the #ManiUpForACure.  No periwinkle nail polish, no problem.  When you donate $20 or more to PHAware, you will be sent a bottle of nail polish, so that you can participate in this campaign.

Now another idea which is just so inspiring and amazing, I can't wait to do create mine, is record a note card story.  It'll allow you to share your PH journey to others on social media.  You can post on YouTube Channel and/or your Facebook Page.  It's a great way to share your story and spread PH awareness. Check out Shannon O'donnell's PH story.

These are just a few ways you can get involved in spreading PH Awareness to family, friends, and your community.  Do one, two or try them all.  For more details and other ideas you can always visit PH Association Awareness page. Do something this month to spread PH Awareness!